Tuesday, January 19, 2016

David's Work


When David comes over, he likes to go into the workshop.

This is what he comes out with.

Wow!



Sunday, January 10, 2016

(Semi) Rocky Road


No, not the ice cream.

So, I have read this horror story of the treatment
of Wegener's in the 1980s & 90s. It makes what I
am experiencing at the moment, like nothing at all.

At the moment, I have steroid induced myopathy.
This means pain & stiffness. Eh. I have a high pain
tolerance anyway.

As time goes on, I get the idea that some folks
mistakenly believe that this is all a nefarious,
deep, dark secret kind of thing. It is not. 

If you want to know about it, ask me.



Friday, January 1, 2016

The Way It Is

Next month, I will make my 5th visit to the Mayo Clinic.
Things are getting more complex. One of the drugs I take
is a chemotherapy drug called Methotrexate. I would be
on this drug for one more year, except that it is adversely
affecting my liver. I have known for months that my doctor
is considering switching me over to an IV drug called Rituxan.
This drug has the potential to do serious damage to my brain.
When I asked her what she would do if it was her mother, 
she said she didn't know.

I have also found out that my right knee has "a lot of
degenerative wear and tear." This is a nice way of saying
that it is shot. I will be seeing an orthopedic surgeon shortly.

I am also tapering off of Prednisone for the second time.
For those unfamiliar with this drug, it is a doozy.
Fat city, lots of pain. You can find a "Prednisone Parody",
by Duncan Cross, online. 

I'll take my humor where I can find it.